Digital Scholarship @ CUA: Federal RePORTER

Federal RePORTER from NIH: Search is an initiative of STAR METRICS® to create a searchable database of scientific awards from federal agencies and make this data available to the public.

http://federalreporter.nih.gov/
http://federalreporter.nih.gov/

Highlighting a new tool in the Scholarly Ecosystem:

Federal RePORTER

Projects across US Federal funding agencies are now searchable for the past 10 years. This tool, begun at NIH and now expanded across other agencies searches awarded grants. The value added for Universities is that we can now see all publications (and patents and citations) associated with a grant project.

In the future, datasets associated with grants will be found here.

NIH and Big Data announcement

NIH Awards $32-Million to Tackle Big Data in Medicine by Paul Basken

NIH is funding studies to help researchers handle big data in medicine. The data collected and collated by the Human Genome Project was just the beginning.

“We see more and more the NIH as a digital enterprise,” said Philip E. Bourne, who this year became the agency’s first permanent associate director for data science.

NIH also recognizes the the problematic issues of big data in medicine: patient privacy, standards for data, and a commitment to sharing data.

Encouraging data sharing

The PLoS One  report published September 26, 2014, outlining new data sharing policies, infrastructure and tools indicates that it is good to share.

NIH Prodding Makes Data Sharing More Common, Survey Finds
Report: “Codifying Collegiality: Recent Developments in Data Sharing Policy in the Life Sciences” ByGenevieve Pham-Kanter, Darren E. Zinner, and Eric G. Campbell published in PLoS ONE

To learn more about accessing data in the Social Sciences, Inter-university Consortium for Political and Social Research (ICPSR) is holding a series of open webinars October 6 -9, 2014:

ICPSR Data Fair 2014: Powering Sustainable Data Access

For many years, ICPSR has hosted several public-access research data archives that are sustained by federal and foundation funding. ICPSR’s 2014 Data Fair will feature webinars about many of these archives and collections, including an introduction to the National Archive of Data on Arts and Culture; the R-DAS collection at the Substance Abuse and Mental Health Data Archive; two Gates Foundation-funded collections at the Resource Center for Minority Data; an orientation to the National Addiction and HIV Data Archive Program; and a Q & A about the Gates Foundation-funded Measures of Effective Teaching Longitudinal Database. You will find descriptions of these webinars in the Data Fair program. Other offerings will include a presentation about ICPSR’s current efforts to fund and achieve sustainable public-access data sharing models, including its newly launched collection known as openICPSR.

NIH policy on genomic data sharing

“The National Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the translation of data into knowledge, products and procedures that improve health while protecting the privacy of research participants.” From post NIH issues finalized policy on genomic data sharing

The policy’s implementation is meant to accelerate biomedical discoveries, while safeguarding patient privacy and data sensitivity. Investigators applying for grant funding in January 2015 will need to supply data-sharing plans prior to the start of their research project.

“Everyone is eager to see the incredible deluge of molecular discoveries about disease translated into prevention, diagnostics, and therapeutics for patients,” said Kathy Hudson, Ph.D., NIH deputy director for science, outreach and policy. “The collective knowledge achieved through data sharing benefits researchers and patients alike, but it must be done carefully. The GDS policy outlines the responsibilities of investigators and institutions that are using the data and also encourages researchers to get consent from participants for future unspecified use of their genomic data.”

Along with statistics about the use of dbGaP data, the Nature Genetics report outlines the challenges facing the field, such as the increased volume and complexity of genomic data.

For a link to the GDS Policy see http://gds.nih.gov.