Projects across US Federal funding agencies are now searchable for the past 10 years. This tool, begun at NIH and now expanded across other agencies searches awarded grants. The value added for Universities is that we can now see all publications (and patents and citations) associated with a grant project.
In the future, datasets associated with grants will be found here.
For many years, ICPSR has hosted several public-access research data archives that are sustained by federal and foundation funding. ICPSR’s 2014 Data Fair will feature webinars about many of these archives and collections, including an introduction to the National Archive of Data on Arts and Culture; the R-DAS collection at the Substance Abuse and Mental Health Data Archive; two Gates Foundation-funded collections at the Resource Center for Minority Data; an orientation to the National Addiction and HIV Data Archive Program; and a Q & A about the Gates Foundation-funded Measures of Effective Teaching Longitudinal Database. You will find descriptions of these webinars in the Data Fair program. Other offerings will include a presentation about ICPSR’s current efforts to fund and achieve sustainable public-access data sharing models, including its newly launched collection known as openICPSR.
“The National Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the translation of data into knowledge, products and procedures that improve health while protecting the privacy of research participants.” From post NIH issues finalized policy on genomic data sharing
The policy’s implementation is meant to accelerate biomedical discoveries, while safeguarding patient privacy and data sensitivity. Investigators applying for grant funding in January 2015 will need to supply data-sharing plans prior to the start of their research project.
“Everyone is eager to see the incredible deluge of molecular discoveries about disease translated into prevention, diagnostics, and therapeutics for patients,” said Kathy Hudson, Ph.D., NIH deputy director for science, outreach and policy. “The collective knowledge achieved through data sharing benefits researchers and patients alike, but it must be done carefully. The GDS policy outlines the responsibilities of investigators and institutions that are using the data and also encourages researchers to get consent from participants for future unspecified use of their genomic data.”
Along with statistics about the use of dbGaP data, the Nature Genetics report outlines the challenges facing the field, such as the increased volume and complexity of genomic data.